Carin' for Karen

Karen tells us how crappy chemo is, and we tell her how uncrappy she is.

Monday, November 27, 2006

Pressing On

The last time I wrote was over a month ago. I know many of you have been wondering what has been going on so I will attempt to fill you in. I had the various tests, but hadn't let you know what the results were. Well, they weren't great. The cancer had grown which indicated that the chemo wasn't effective. Because of this, I went back to Duke University hospital for their input. They are conducting a research study of a new breast cancer drug which I had been hoping to take part in, but wasn't allowed to take part in, until last month. I am now part of the clinical trial for the drug, Lapatinib or Tycerb. (It is known by both names.) I had been reading about the drug's benefits for quite a while, so when it worked out that I could be part of the study, I was really grateful.

I have been taking the drug for over a month now and early indications seem to imply that the cancer is responding. I have not had an easy time of it though. The side-effects are daily nausea, diarrhea, and sometimes vomiting. I am not sure if all these difficulties are caused exclusively by the Lapatinib or because of the ulcers and related problems. I suspect it is a little of both, but this is why I haven’t felt up to writing. I have spent a lot of time just dealing with being sick and trying to get a handle on the pain.

I have one week left before I go through another series of tests. Because I am part of the clinical trial, these tests (CT scans, bone scans, blood work etc) are required. It takes most of the day and I often come home tired, weak, and sick, but it’s all part of keeping a record of how the cancer is responding to treatment. So I press on.

I guess that is the answer to the question that everyone keeps asking me. “How are you doing?” I am pressing on. I refuse to give up no matter how sick I feel or how hard the road gets. As long as I keep pressing on, I have hope. Each day is a new gift from God. Each new day He gives me to live is a day which the Lord has made so I will rejoice and be glad in it. Sometimes I have to be reminded of this truth, but when I do remember it, I am strengthened.

12 Comments:

  • At 9:36 AM, Anonymous Anonymous said…

    dear Burntham,

    sorry abvout the set back, happy about the progress todate on the new. wish you the best always and in my thoughts.

    mk

     
  • At 9:43 AM, Anonymous Anonymous said…

    Karen,

    My thoughts and prayers are with you. You are strong and can beat this thing. Your faith is with Whom it belongs. Stay strong.

    Tom MaKinster

     
  • At 9:50 AM, Anonymous Anonymous said…

    Dear Karen,

    God is good and He has great plans for you...Jeremiah 29:11. I am praying for you and have asked many friends at church to join me. May you and your family continue to have the peace of our Lord and Savior in your life.

    God Bless you,
    Terry Walters Butterweck

     
  • At 9:52 AM, Anonymous Anonymous said…

    Karen,
    Always praying for you.
    Rick Palmer

     
  • At 10:00 AM, Anonymous Anonymous said…

    Dear Karen

    You have been on my mind and in my prayers quite often. I have a number of friends who are battling as you are... pressing on. You are the strongest people I know. God bless you and yours.

    My thoughts and prayers are with you,
    Madge (Steiner) Devine

     
  • At 11:10 AM, Anonymous Anonymous said…

    dear Karen,
    Glad to see they have let you be a test subject. Hope the results are good. Praying for you.
    Dick Tuite

     
  • At 11:17 AM, Anonymous Anonymous said…

    Karen,

    You will be in my thoughts and prayers. Keep the faith, God will see you through.

    Darlene (Hillard) Gable

     
  • At 12:20 PM, Blogger jim said…

    Hi Smiley!

    "We're thinkin' on ya!", as my Ozzie friends would say. Glad to hear that it may be responding to the new treatment program. Sounds like Tykerb came along at just the right time. His time. ;-)

    cheers
    jim

     
  • At 8:40 PM, Anonymous Anonymous said…

    karen,
    my thoughts are with you. i think of you quite often with everything you have to deal with. i hope you will respond to this trial test drug. it amazes me how strong you are,karen.
    love,
    michele(misnick)roberts

     
  • At 9:38 AM, Anonymous Anonymous said…

    Karen,

    Your Courage, Faith and Strength inspire me. May God bless and keep you and your family!

    Love,

    Sheila

     
  • At 1:57 AM, Anonymous Anonymous said…

    Dear Karen, I have been following your courageous battle. Your strength and faith are truly inspiring. You and your loved ones are always in my prayers. Tom Valego

     
  • At 11:55 AM, Anonymous Anonymous said…

    Hello Karen,
    Have you checked Ralph Moss' website? www.cancerdecisions.com
    Here's mine, in case you're interested:
    http://home.scarlet.be/hexagonal
    Best wishes,
    Thierry

     

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